Category: family network

welcome to girlfriends with aging parents

caring for 2 moms in 1 household!

After my father passed away at the age of 80 in 2002, my husband and I had the discussion of how we would handle my mother being alone. After a couple of years of running back and forth to tend to her needs (she doesn’t drive and was very dependent on my father), we made the decision to build a home to have not only my mother come and live with us but also my husband’s mom (who had been a widow living alone for 20 years). We had it all planned perfectly. Our single-level house was designed with loads of space for everyone to feel comfortable with plenty of privacy. One big happy family, right? Uh, not so much. While we took into consideration the wonderful opportunity it would be for our mom’s to have us there for them and perhaps the comraderie they might feel toward each other, we failed to seriously consider other issues:

1. Our privacy, our routine, our way of life.

2. The interaction between these two women, who have two very different personalities. Instead of embracing each other, they would come to see each other as competition for my husband’s & my attention.

So, now you’re saying…”What are you two nuts or something?” Well, no! We consider ourselves to be very rational and successful human beings and we expected our mothers to be the same way. Well, they’re just not. They don’t react to life the same way we do. They’re not confident or self-assured women. They’re not outgoing or social. Neither of them have close friends. They not only rely on us for help with medical issues and for help due to physical limitations (i.e grocery shopping, meal prep, etc), which we are happy to give, but they COMPLETELY rely on us for their social and emotional needs. It can be exhausting at times. They can get so wrapped up in themselves, that they forget the impact their needs have on our lives…as if we have no needs at all! Although we both love our mothers very, very much, their behavior has resulted in some resentment from us. We wonder how they could be so selfish and inconsiderate to the people who care for them the most???

I’ve read countless books and articles on care-giving for the elderly, but so far, they haven’t really given me the answers I’m searching for. I realize that having expectations for an 85/86 year old to change character traits is completely unrealistic but why doesn’t the love our parents have for us seem to have a positive impact on their behavior? We treat them with respect, are mindful of their privacy and try to interact with them on an adult-to-adult basis. Perhaps there are mysteries of the aging brain that are impossible to understand. In our hearts, we know we are “doing the right thing”, but the daily weight of it all can break us down, fill us with doubt and cause tension between us.

I come to this blog to seek out the advice and hear the experiences of my fellow care-givers, hoping to find some inspiration to keep on keepin’ on with positive energy. All I can tell you is that I share your pain, fellow caregivers! I do believe we are a special group of individuals that can learn from & support each other!!!

submitted by Barbara

 

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spots on Mom’s clothing

Last week I was at a meeting, deep in thought about the recent loss of my mother at age 94. Toby was explaining the frustrations of caregiving for our declining parents.

“I sat across the table from her and saw spots on her clothes! I am just trying to adjust my memory of a mother who was a fastidious dresser all of her life. How can we just ‘roll’ with these kinds of things—that’s the help I need.”

Toby’s anguish brought me out of my reverie. I saw my own “fashionista mother” as we sat at dinner with food spots-that did not come out in the wash or by her care-giver rubbing them. I revisited my feelings of helplessness and loss—then.

“Toby,” I told her as I put my hand in hers, “I can help you.”

I give you all this vignette as a gift from one daughter’s heart to the hearts of others. It took some planning and courage—but any version of this will make you feel better. It’s one of those things we can sort of control and we face inevitable things I now have learned we cannot control.

Like a recipe: Visit a few cleaners near where you or your mother live. Tell them you are bringing in a large order of clothes that need to be spotted for food spots. Ask if there is a “large order” or senior discount and find out how short a turnaround you can get. ( I actually found a cleaners near my mother that gave a large senior discount.)

You tell your mother it bothers you that many of her clothes have spots on them and you think she may not be aware of this. ( My mother denied it and was sort of mad at me.)

‘Mom, I found a cleaner that gives discounts to seniors and I am taking your clothes with spots over there today.” This is what I said and my mother was not in agreement-I was very strong in my resolve and just really overpowered her to get my way.

I then took everything in her closet—coats, jackets, tops, pants out of her condo and went to the cleaners. I left her two or three outfits that I knew she liked.

I had them back two days later!

I asked the cleaners to put aside any garment with spots that would not come out and I evaluated how bad these stains were. Bad? If they were, they did not go back to the condo. Some things never came back into the closet: silk blouses, light-colored pants with stains—etc.

Yes, she knew I took them. Yes, she was perturbed at me, but I think she had just enough pride left to know that she would now have clean clothes all the time. She did not stay mad!!!

I did this about a year before my mother died, after agonizing over it for a decade!

Please, do not wait as long as I did to form some kind of a plan using my experience!!!

 

written by Laurie

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senior driving: when is it time to stop?

As a child of aging parents we ask ourselves this very question. As a Certified Driver Examiner in the province of Ontario, I know when it’s time. Unfortunately senior don’t either.

In this province, every driver has to go for a written and vision test when they reach the age of 80, and every 2 years after. These folks got their drivers license before Driver Education classes began and there were not so many vehicles on the road.

My father (aged 87) told me he did his drivers test, landed on someone’s front lawn and the examiner jumped out of the car and threw the license at him saying “You passed”.

If someone is involved in a car accident (whether they caused it or not) at age 65 or over, they automatically have to go for a road test, which is a regulation.

In this province, the only one that can suspend a driver’s license for medial reasons is a doctor. It’s the law. When the family speaks to a senior’s doctor regarding concerns for unsafe driving, the doctor has to put the license under medical suspension. The file then goes to Medical Review at the Ministry of Transportation. The suspended driver has to prove they are competent to drive and the process begins. They have up to 3 years to take driving test to regain their license and have to see a doctor to establish that they are healthy enough to drive. Every province and state should adopt the same rules, as we frequently travel to each others country.

If you find yourself in the position of caring for your elderly parents, get some support.

Continue on with YOUR life, do the things that make you happy. Go to the movies; enjoy watching and participating in sporting events that you love. Perhaps get counseling. I did, it really helped. It helped me deal with their aging brains and not get upset at the weird things they said to me.

Seniors don’t realize their senses have diminished; their reaction time has lessened. It’s a known fact that seniors can suffer mini strokes while driving, usually lasting for only second, but that’s all it takes – right?

Once a senior has failed a driving test, the family usually becomes unhappy because they realize now they have to drive the senior around to appointments. But as a caring society, we have to stop being selfish – we can’t have unsafe drivers on the road.

I know the Cancer Society will arrange for transportation if a person is undergoing treatment. In my town the mobile bus (for people with disabilities) will come directly to the house to pick you up if you call before and arrange a time. There are options. If you inquire you can find assistance in your town.

Also, try to pace yourself and get support, from us, from other family members, from neighbors. It will all work out and you will be blessed for your efforts.

Submitted by Carol

 

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what is an ethical will?

Kari Berit, radio host & speaker is passionate, authentic, down-to-earth, and fun. She connects immediately with her audiences. “She was talking about me,” “I feel like I’ve known her forever,” and “I feel energized after hearing her” are just a few of the participant comments that follow her keynotes.

Kari has spent her career helping people and institutions manage transitions and embrace the unfamiliar. Her expertise lies in aging and caregiving, two journeys in our lives for which we are poorly prepared. She is the author of two books, The Unexpected Caregiver and Mental Fitness Guide, both published by Attainment, and also hosts the weekly Unexpected Caregiver radio show. She contributes regular columns and articles on aging and caregiving topics and consults on peer-to-peer run caregiver support groups.

Tune in & listen to Kari’s words of wisdom as she shares her experiences with us!

www.kariberit.com/files/2013-Ethical-Wills-revamp-NRC.mp3

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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to my grandfather … I will miss you!

I was recently at a funeral service for my girlfriend’s father-in-law. It was an intimate group of us & we listened attentively to those who spoke. The last person who got up was my girlfriend, who read the following poem written by her 14 yo niece. I was moved by the tenderness of her words. There was not a dry eye in the room. I was struck by the heart & soul of this young girl! She wrote the following:

You were sick and tired and we all knew, that God would soon come to take you.

You fought so hard, so very long, but through the pain, you stayed strong.

We all knew there would come a day, when God would come to carry you away.

It doesn’t make it easier to say goodbye, as I try so hard not to cry.

I can’t help but feel defeated, or even maybe a little cheated.

But how very selfish would I be, to hope and pray you could stay with me.

So as you laid there, tubes running to and fro, I had to tell you “It’s ok to let go”.

Say “hi” to loved ones, waiting on the other side. I know some day,  you’ll be there when I take that ride.

Poppy, I love you.

===============

 

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mindful caregiving

Hurry, hurry, rush, rush seems to be the mantra of modern life. We are constantly rushing to work, to pick the kids up from school, to get dinner on the table; all with the incessant chorus of cell phones beeping and buzzing, demanding our attention. When a loved-one experiences an accident or experiences a major-medical problem, it is as if life is throwing a giant stop sign in our paths. But we don’t know how to slow down, much less stop.

Whether we are caring for an elderly parent with dementia or a spouse recovering from a heart attack, it can be hard to force our busy minds to match the new, slow pace at which our loved ones move. The endless hours spent caregiving are so easily filled with worry and rumination. The practice of mindfulness- learning to live in the moment- can help us savor our time with our loved ones. Research shows that the happiest people on Earth practice mindfulness. Luckily, you don’t have to be a Buddhist monk or buy special equipment to learn this practice. The whole point is to tune in to the here and now. The Art of Now: Six Steps to Living in the Moment by Jay Dixit describes both the benefits of mindfulness and ways to get started much better than I am able to. http://bit.ly/Zfvnc6

Early on in my career as a caregiver, I discovered that mindfulness made my shifts seem to flow by quickly. The practice helped me capture the most joyful moments with my clients. One elderly woman I cared for had such cold hands, we spent many evenings holding hands on her couch. Rather than counting the minutes as they ticked by, I learned to enjoy the moment. I studied our hands clasped together; my young, plump hand entangled with her slender fingers, decorated with a blue web of veins. I noticed her skin gradually warm up. Just as discussed in the above link, I truly savored those moments with my client. We both found such peace in each other’s company.

I believe the practice of mindfulness makes me a much better caregiver. By focusing on the here and now, I notice things such as a pin in the carpeting or a throw rug’s upturned corner that would be easily overlooked if I were mindlessly worrying about something else. Observing my surroundings helps me keep my clients out of harm’s way. Applying that same power of observation to a client helps me detect changes in their health more quickly. Observant caregivers can spot the malaise that comes before a urinary tract infection or a bout of the flu. When working with people with dementia, noticing those little warning signs that precede an outburst helps keep things from getting out of hand. Learning to live in the moment takes practice and time to master, but the rewards are well worth the effort. With time, it becomes effortless.

~Amy Kirkeide, Comfort Keepers

 

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caregiver exhaustion

CAREGIFTED is an amazing story. Heather McHugh, poet/author of eight volumes of poetry, a book of essays and other published writings is the Milliman Distinguished Writer-in-Residence at the University of Washington. In 2009 she received an MacArthus Fellows Program award – an unrestricted $500,000 five-year fellowship given to talented individuals who have shown extraordinary originality and dedication in their creative pursuits. There are absolutely no strings attached, and Heather has used her money to found CAREGIFTED. CAREGIFTED helps “enabling angels” – the weariest of caregivers: ones who have been at it for more than a decade, and who have had to give up their own professions, ambitions, income, wishes and needs for the duration, and for the sake of others. Over a 2-year pilot program, the organization hopes to provide week-long all-expense-paid fully – concierged getaways (transportation, lodging, food etc) for 24 exhausted people unlikely ever to be able otherwise to take such a break.

As a caregiver myself, I luckily have had the chance for respite. However, this thoughtful and inspiring program helps to recharge and re-inspire a caregiver who otherwise NEVER gets time off (or any pay for) his or her work at home with disabled loved ones. What other ways can caregivers get a break? Any ideas to share? written by Norma

 

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a dreaded move to assisted living – help!

When is the time for a parent to move to assisted living? My father passed away four months ago and since then, my mother’s health has steadily deteriorated. Her depression has led her to an almost solitary existence except for the caretakers and my visits. She lives in a retirement home which has limited assisted units available and one has just opened up. It is a studio unit – much smaller than the two bedroom apartment she is living in now.

I know that change can be very difficult for older adults. However, her additional care in independent living is very costly and she is running through her savings at an alarming rate. Assisted living seems to offer better care and includes many of the extras she pays a premium for now.

I hesitate to be the one to make the final decision and desperately want her to “buy in”. She really doesn’t want to make the decision. I am torn between my feeling of responsibility to make sure that my mom is well cared for and my reluctance to become the bad guy – the one who forced her to make a move she really didn’t want to make. How have others dealt with this decision? written by Laurie in Tennessee

 

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how to have “the talk” – my mother’s worries

My grandmother suddenly lost her partner last April and didn’t want to live alone in their traditional apartment. My parents offered to take her in to their home and have admitted to my sister and me that they didn’t put a lot of thought into it before asking her. They did tell her however, that while they are away four months of the year wintering in Texas, that she would have to go stay with her other daughter in town, my aunt. My aunt can be difficult and that only lasted for one month before my grandmother insisted on coming back to my parents house. She said she is not going back there next year. This year it worked out okay because my sister and her husband are temporarily staying at my parents house for the next two months while they are away and can look after my grandmother. Next year will be a problem. My mother worries about her and doesn’t want her staying in the house alone. My grandmother says she will be fine!

One of the greatest joys for my parents is going to Texas for the winter. My grandmother used to join them occasionally but says now that she doesn’t want to be that far from her doctor. My mom would really like for my grandmother to look into the retirement home a mile and a half from their home but doesn’t know how to bring it up. She is in reasonably good health and my mom feels that having activities to do will keep her younger. My grandmother doesn’t want any part of it. Meanwhile, my parents have rearranged many aspects of their live for her. My dad pretty much lives in his bedroom but wouldn’t dream of hurting my grandmothers feelings by asking her to leave. I am from the polite family, so there is a lot of silent suffering going on! My mom wants to start a conversation with my grandmother about checking out the retirement place but doesn’t know how to go about it. I am looking for advice from people who have been in this situation to know what to and not to say. I should mention that while I love my grandmother very much, she has been spoiled all her life and everyone always caters to her. How can I help my mom find the courage and words to make this a win win for everyone.

Thank you in advance for any words of wisdom. Submitted by Mechelle

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an interview not to be missed!

King 5 TV featured a panel discussion on aging parent issues today, in which 6 of us talk about our pressing concerns. Check us out!  If you have an issue that you think should be addressed as part of this on-going series, send it to us on our web site via “Contribute a post”.

Thanks, Norma & Toby
Video www.king5.comSeattle’s source for breaking news video on demand from KING 5 TV and KONG 6/16. KING5.com

 

 

 

 

 

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