Category: the process

welcome to girlfriends with aging parents

caring for 2 moms in 1 household!

After my father passed away at the age of 80 in 2002, my husband and I had the discussion of how we would handle my mother being alone. After a couple of years of running back and forth to tend to her needs (she doesn’t drive and was very dependent on my father), we made the decision to build a home to have not only my mother come and live with us but also my husband’s mom (who had been a widow living alone for 20 years). We had it all planned perfectly. Our single-level house was designed with loads of space for everyone to feel comfortable with plenty of privacy. One big happy family, right? Uh, not so much. While we took into consideration the wonderful opportunity it would be for our mom’s to have us there for them and perhaps the comraderie they might feel toward each other, we failed to seriously consider other issues:

1. Our privacy, our routine, our way of life.

2. The interaction between these two women, who have two very different personalities. Instead of embracing each other, they would come to see each other as competition for my husband’s & my attention.

So, now you’re saying…”What are you two nuts or something?” Well, no! We consider ourselves to be very rational and successful human beings and we expected our mothers to be the same way. Well, they’re just not. They don’t react to life the same way we do. They’re not confident or self-assured women. They’re not outgoing or social. Neither of them have close friends. They not only rely on us for help with medical issues and for help due to physical limitations (i.e grocery shopping, meal prep, etc), which we are happy to give, but they COMPLETELY rely on us for their social and emotional needs. It can be exhausting at times. They can get so wrapped up in themselves, that they forget the impact their needs have on our lives…as if we have no needs at all! Although we both love our mothers very, very much, their behavior has resulted in some resentment from us. We wonder how they could be so selfish and inconsiderate to the people who care for them the most???

I’ve read countless books and articles on care-giving for the elderly, but so far, they haven’t really given me the answers I’m searching for. I realize that having expectations for an 85/86 year old to change character traits is completely unrealistic but why doesn’t the love our parents have for us seem to have a positive impact on their behavior? We treat them with respect, are mindful of their privacy and try to interact with them on an adult-to-adult basis. Perhaps there are mysteries of the aging brain that are impossible to understand. In our hearts, we know we are “doing the right thing”, but the daily weight of it all can break us down, fill us with doubt and cause tension between us.

I come to this blog to seek out the advice and hear the experiences of my fellow care-givers, hoping to find some inspiration to keep on keepin’ on with positive energy. All I can tell you is that I share your pain, fellow caregivers! I do believe we are a special group of individuals that can learn from & support each other!!!

submitted by Barbara

 

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mindful caregiving

Hurry, hurry, rush, rush seems to be the mantra of modern life. We are constantly rushing to work, to pick the kids up from school, to get dinner on the table; all with the incessant chorus of cell phones beeping and buzzing, demanding our attention. When a loved-one experiences an accident or experiences a major-medical problem, it is as if life is throwing a giant stop sign in our paths. But we don’t know how to slow down, much less stop.

Whether we are caring for an elderly parent with dementia or a spouse recovering from a heart attack, it can be hard to force our busy minds to match the new, slow pace at which our loved ones move. The endless hours spent caregiving are so easily filled with worry and rumination. The practice of mindfulness- learning to live in the moment- can help us savor our time with our loved ones. Research shows that the happiest people on Earth practice mindfulness. Luckily, you don’t have to be a Buddhist monk or buy special equipment to learn this practice. The whole point is to tune in to the here and now. The Art of Now: Six Steps to Living in the Moment by Jay Dixit describes both the benefits of mindfulness and ways to get started much better than I am able to. http://bit.ly/Zfvnc6

Early on in my career as a caregiver, I discovered that mindfulness made my shifts seem to flow by quickly. The practice helped me capture the most joyful moments with my clients. One elderly woman I cared for had such cold hands, we spent many evenings holding hands on her couch. Rather than counting the minutes as they ticked by, I learned to enjoy the moment. I studied our hands clasped together; my young, plump hand entangled with her slender fingers, decorated with a blue web of veins. I noticed her skin gradually warm up. Just as discussed in the above link, I truly savored those moments with my client. We both found such peace in each other’s company.

I believe the practice of mindfulness makes me a much better caregiver. By focusing on the here and now, I notice things such as a pin in the carpeting or a throw rug’s upturned corner that would be easily overlooked if I were mindlessly worrying about something else. Observing my surroundings helps me keep my clients out of harm’s way. Applying that same power of observation to a client helps me detect changes in their health more quickly. Observant caregivers can spot the malaise that comes before a urinary tract infection or a bout of the flu. When working with people with dementia, noticing those little warning signs that precede an outburst helps keep things from getting out of hand. Learning to live in the moment takes practice and time to master, but the rewards are well worth the effort. With time, it becomes effortless.

~Amy Kirkeide, Comfort Keepers

 

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caregiver exhaustion

CAREGIFTED is an amazing story. Heather McHugh, poet/author of eight volumes of poetry, a book of essays and other published writings is the Milliman Distinguished Writer-in-Residence at the University of Washington. In 2009 she received an MacArthus Fellows Program award – an unrestricted $500,000 five-year fellowship given to talented individuals who have shown extraordinary originality and dedication in their creative pursuits. There are absolutely no strings attached, and Heather has used her money to found CAREGIFTED. CAREGIFTED helps “enabling angels” – the weariest of caregivers: ones who have been at it for more than a decade, and who have had to give up their own professions, ambitions, income, wishes and needs for the duration, and for the sake of others. Over a 2-year pilot program, the organization hopes to provide week-long all-expense-paid fully – concierged getaways (transportation, lodging, food etc) for 24 exhausted people unlikely ever to be able otherwise to take such a break.

As a caregiver myself, I luckily have had the chance for respite. However, this thoughtful and inspiring program helps to recharge and re-inspire a caregiver who otherwise NEVER gets time off (or any pay for) his or her work at home with disabled loved ones. What other ways can caregivers get a break? Any ideas to share? written by Norma

 

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mom’s fighting her weekly shower …

My mom is 88 yrs old and has light vascular dementia. Presently, her caregiver is having difficulty with her not wanting to have her weekly shower. She has always been a fanatic about her hygiene and still strives to look her best everyday, complete with wig, jewelry, etc. She had one caretaker that was rough with her, when her regular caretaker who bathes her, was ill and not available. I have since, requested that this particular caretaker not do her bathing anymore. After several weeks, my mom is still resisting her shower, stating that she has already had it. I have reiterated to her how important it is for her to have her regular bathing. I considered setting up a weekly calendar with her, where we can mark off the days together in hopes of engaging her more. Has anyone had experience with this or a similar situation? I need some ideas or your thoughts!

Thanks, Anna

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an interview not to be missed!

King 5 TV featured a panel discussion on aging parent issues today, in which 6 of us talk about our pressing concerns. Check us out!  If you have an issue that you think should be addressed as part of this on-going series, send it to us on our web site via “Contribute a post”.

Thanks, Norma & Toby
Video www.king5.comSeattle’s source for breaking news video on demand from KING 5 TV and KONG 6/16. KING5.com

 

 

 

 

 

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balancing act when mom is so needy!

How do you find time to take care of yourself after a parent’s death when the surviving spouse is so needy? My Dad has recently passed away and my Mom, who was always totally depended on him during 60+ years of marriage, is now looking to me, an only child, to fill the void. With my own husband and children’s needs and full time work, I haven’t had a second to address my own grief. Mom has tough health issues, my husband has work challenges and I need to be there for both. How does one find any kind of balance? I feel jumpy and uncomfortable in my own skin right now. I know there must be plenty of others who have gone through the same experiences and would appreciate it if you could share how you coped. written by Janet is Kansas

 

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Forever Young interview

toby and normaNorma & I were interviewed by Chris Schobert, writer for “Forever Young” magazine. Great title, right? Check it out.

http://www.foreveryoungwny.com/news/2012/aug/17/open-forum-sharing-stories/

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dementia – help with Mom

I would like to hear more about dementia patients & how families deal with this. Example: my mother lives in an Adult Family Home. She is wheelchair bound due to numerous fractures & severe osteoporosis & arthritis. Her short term memory is almost non-existent. Mom has her good days & her bad days. When I visit & she is having a bad day, she is depressed, and won’t talk much. She doesn’t believe anything you tell her, complaining about everything from the food to the other residents & on & on. My mom is on an antidepressant. She has gained about 15 lbs in the 9 months she has been there & caregivers tell me she eats well.

This is the dilemma – how do I handle visits when she is like this? I visit about 1x a week. My sister, who lives farther away, visits about once a month. Mom says my sister has never been to see her. I don’t argue with my Mom, but visiting is so frustrating. 

Can anyone tell me how they cope??? Need some help dealing with Mom.  Nancy

 

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POLST and Dad

My 87 year old father passed away three weeks ago of a massive brain hemorrage. In the time since, I am unable to shake a feeling of guilt among other emotions. In the midst of rushing to the emergency room, I forgot to grab his POLST off the refrigerator in my parent’s apartment. I thought I knew what it said, as I had read it a while back and provided copies to the retirement facility and his doctor. When faced in the emergency room with an x-ray and two neurosurgeons predicting paralysis, possible loss of speech and a very stormy future should he somehow make it through surgical measures, I felt that the option of comfort care only made sense. My Dad had recently returned from a nursing facility after recovering from pneumonia and he had firmly stated, several times, that he NEVER wanted to return there . Even if some miracle occurred, he would end up back at the nursing home for months, if not forever.

My beloved Dad was dying. I wanted to save him – to fix things somehow – but I couldn’t. My Mom was unable to make any decisions in the heat of the moment, so it was left up to me. Keeping him comfortable to the end seemed the only way and when I asked the second neurosurgeon if I was making the right decision, she was supportive. The doctors asked about intubation; I said I believed he would not have wanted that; that he would not have wanted any kind of invasive measures under the circumstances. They moved him to a private room as he fell into a coma, kept him hydrated and administered morphine if he exhibited signs of discomfort or restlessness. My dad passed away the following day.

A week later, when helping my Mom in their apartment, I noticed his POLST on the refrigerator and removed it. When I got home, I read it. It indicated that he wanted full treatment including intubation with a time limited trial on a ventilator for a reversible cause of respiratory failure, antibiotics if medically indicated and a defined trial of artificial nutrition by tube.

In my head, I know that a massive brain hemorrhage is what it is. A big IF he survived surgery, he would have been a prisoner in a facility he absolutely detested, in a body that was no longer his own to control. In my heart, I am filled with doubt that I did the “right thing”. Did I, didn’t I? Has anyone ever has this experience??? Written by Louise in Arkansas

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daughters’ quandary – my dad lives alone and …

My dad is 96 years old and still lives in his own home. He does his own cooking, etc. and has a housekeeper once a month. I go to visit him once a week (Dad only lives 12 miles away). I do his grocery shopping and take him to doctor appointments etc. My dad  has a bum knee, uses a cane and can’t walk too far. He has macular degeneration very bad in one eye (and is going blind) but otherwise is in good health. My problem is that my husband & I are snowbirds, (we live in Washington) and have a place in California. I don’t feel like I can leave him alone in case something happens to him. I think it would be too traumatic for my dad to have to move and I don’t have room for him. Do I go to California for just a month or stay home with him? others have same problem? written by Gladys

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