Tag: caregiver stress

welcome to girlfriends with aging parents

caring for 2 moms in 1 household!

After my father passed away at the age of 80 in 2002, my husband and I had the discussion of how we would handle my mother being alone. After a couple of years of running back and forth to tend to her needs (she doesn’t drive and was very dependent on my father), we made the decision to build a home to have not only my mother come and live with us but also my husband’s mom (who had been a widow living alone for 20 years). We had it all planned perfectly. Our single-level house was designed with loads of space for everyone to feel comfortable with plenty of privacy. One big happy family, right? Uh, not so much. While we took into consideration the wonderful opportunity it would be for our mom’s to have us there for them and perhaps the comraderie they might feel toward each other, we failed to seriously consider other issues:

1. Our privacy, our routine, our way of life.

2. The interaction between these two women, who have two very different personalities. Instead of embracing each other, they would come to see each other as competition for my husband’s & my attention.

So, now you’re saying…”What are you two nuts or something?” Well, no! We consider ourselves to be very rational and successful human beings and we expected our mothers to be the same way. Well, they’re just not. They don’t react to life the same way we do. They’re not confident or self-assured women. They’re not outgoing or social. Neither of them have close friends. They not only rely on us for help with medical issues and for help due to physical limitations (i.e grocery shopping, meal prep, etc), which we are happy to give, but they COMPLETELY rely on us for their social and emotional needs. It can be exhausting at times. They can get so wrapped up in themselves, that they forget the impact their needs have on our lives…as if we have no needs at all! Although we both love our mothers very, very much, their behavior has resulted in some resentment from us. We wonder how they could be so selfish and inconsiderate to the people who care for them the most???

I’ve read countless books and articles on care-giving for the elderly, but so far, they haven’t really given me the answers I’m searching for. I realize that having expectations for an 85/86 year old to change character traits is completely unrealistic but why doesn’t the love our parents have for us seem to have a positive impact on their behavior? We treat them with respect, are mindful of their privacy and try to interact with them on an adult-to-adult basis. Perhaps there are mysteries of the aging brain that are impossible to understand. In our hearts, we know we are “doing the right thing”, but the daily weight of it all can break us down, fill us with doubt and cause tension between us.

I come to this blog to seek out the advice and hear the experiences of my fellow care-givers, hoping to find some inspiration to keep on keepin’ on with positive energy. All I can tell you is that I share your pain, fellow caregivers! I do believe we are a special group of individuals that can learn from & support each other!!!

submitted by Barbara

 

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caregiver exhaustion

CAREGIFTED is an amazing story. Heather McHugh, poet/author of eight volumes of poetry, a book of essays and other published writings is the Milliman Distinguished Writer-in-Residence at the University of Washington. In 2009 she received an MacArthus Fellows Program award – an unrestricted $500,000 five-year fellowship given to talented individuals who have shown extraordinary originality and dedication in their creative pursuits. There are absolutely no strings attached, and Heather has used her money to found CAREGIFTED. CAREGIFTED helps “enabling angels” – the weariest of caregivers: ones who have been at it for more than a decade, and who have had to give up their own professions, ambitions, income, wishes and needs for the duration, and for the sake of others. Over a 2-year pilot program, the organization hopes to provide week-long all-expense-paid fully – concierged getaways (transportation, lodging, food etc) for 24 exhausted people unlikely ever to be able otherwise to take such a break.

As a caregiver myself, I luckily have had the chance for respite. However, this thoughtful and inspiring program helps to recharge and re-inspire a caregiver who otherwise NEVER gets time off (or any pay for) his or her work at home with disabled loved ones. What other ways can caregivers get a break? Any ideas to share? written by Norma

 

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selfish or self-care? a daughter’s dilemma

I was recently reminded by someone offering some advice on why I was always so exhausted, that I am my parent’s daughter – not their caregiver. I had unconsciously slipped into a role of servitude, running myself ragged between taking them to doctor’s appointments, managing their medications and doing their shopping. Was it that lingering childhood need to prove myself or to assuage some kind of guilt? After much introspection, I decided to stop feeling sorry for myself and take action!

My parents are in a retirement home and for an additional $55 a month each, a nurse on the premises will handle the reordering of pills and fill a pill box for each of them weekly, taking over all of the responsibility attached to the nearly 20 different medications they take between the two of them. This enormously time consuming responsibility is now in her hands. I realized that it was one of the best investments that could be made – $110 a month to preserve my sanity, health, marriage and work load. For an extra $30 once a week, I could have someone do their grocery shopping.

The difference? Now I can spend quality time visiting my Dad and Mom. I am much more relaxed, able to enjoy their company and focus on what they are saying. Be kind to yourself and assess who you really want to be. Sometimes help is right in front of you and all you need to do is take advantage of it. Has anyone out there had this problem???

Written by Joyce in Savannah

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caregiving: unpacking the family baggage

No one can jump on another person like a family member can…it’s raw emotion, full of stale, unresolved baggage. It falls on you like a ton of bricks. When it comes to giving care to an aging parent, why should we believe it will be different?

5 tips for families taking care of family:

1. Remember the family baggage? The unresolved issues from the past you’ve neatly swept under the proverbial carpet? Once you start down the road of caring for an aging parent, the carpet takes flight and the baggage is exposed. Brothers and sisters who fought before, will fight again. You will revisit issues from the past. Stay alert.

2. Put yourself on the gentle cycle. Now is the time to get that massage, take a long walk, cuddle with your dog. Family caregiving brings a family back together under intense circumstances. You simply must be kind to yourself, which may translate to others as being selfish. Stay true to yourself. Keep your good, best friends on speed dial when you need a quick and supportive message of love.

3. Walk away. Hard as it may be, you may have to excuse yourself from the family. Just because someone needs care, doesn’t mean you have to expose yourself to bad behavior by others. This is not easy. But think of the family member who needs the care…they need calm rather than commotion. Explore just how you can honor your loved one while taking care of yourself.

4. Mom may not love you best. Now is not the time to fight to be mom’s number one kid. It’s not personal. If mom trusts the brother you think is incapable of making all her financial decisions, you must let it go. This is not the time to prove to your mother that you’re really better with finances. There are reasons you mother trusts your brother, and that is just how it is. Unless he’s crooked, he’s your mom’s choice.

5. It doesn’t have to be YOU. Even though you promised your parents “you wouldn’t put them in a nursing home,” you didn’t promise that you, all by yourself, would take care of them. You may not be the right fit to change Dad’s diapers or feed Mom. Get help. You may have promised you’d care for them, but that is not the same as doing the hands-on-caregiving.

If there are any tips you have used feel free to share!

Kari Berit (www.KariBerit.com) is a radio show host, speaker and the author of The Unexpected Caregiver: How Boomers Can Keep Mom & Dad Active, Safe and Independent.

 

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solutions to caregiver stress

As the days are becoming shorter, and darkness is upon us quicker each day, it is easy to feel stress come upon us also. We may feel we do not have enough time to plan for the holidays, and on top of caring for a senior it is making us feel stretched too thin. Stress can happen in a variety of situations but can be dealt with when you know the right solutions.

Here are some suggestions by Comfort Keepers®

• Go to your favorite restaurant and enjoy your favorite meal. Taking a night off from cooking will allow you to relax and not worry about meal prep and cleanup.

• Exercise can be a great way to relieve stress! Head down to your local gym or take a walk around the neighborhood. Take the time to enjoy sunshine while it is here!

• Throw on a comfy pair of PJ’s and watch your favorite movie. This is a great stress reliever to do with the whole family.

• Breathing exercises and YOGA have also been proven to relieve stress. Youtube is a great resource for brief yoga exercises if you are short on time.

• Don’t be afraid to lose yourself in a good book or magazine!

Be sure to check with your doctor before doing any physical activity your body is not used to doing. Even though talking about what is making you stressed might make you realize everything you are responsible for, it can also be a good reliever. Talking things out leads to planning which leads to solutions.

Caring for a senior and a family, you can be stressful but with careful planning and activities you enjoy throughout your week, you will be on your way to a reducing stress. When you are stress free, your care giving is stress free and everyone is in a much better position. Let me know if these work or if you have other ideas to add!

submitted by: Kayleigh

 

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November is National Family Caregivers Month

On November 1, 2012, President Barack Obama signed a Proclamation, which reads in part, “During National Family Caregivers Month we recognize and thank the humble heroes who do so much to keep our families and our communities strong.”

A family caregiver may be a parent, spouse, adult child or friend who is responsible for the daily needs of another person. They balance the needs of a loved one while trying to take care of the rest of their family and themselves, plus work, volunteer, or go to school. Becoming a family caregiver can happen suddenly. A severely handicapped child is born, a spouse has a stroke, a diagnosis is given, or parents can no longer take care of themselves. Unplanned, it is a stressful occasion.

Caregiving consists of two parts. One part is the medically related situations that require immediate attention. The other part is the issues that arise daily and do not have an end. These are the day-to-day assistance needed by someone: monitoring medications, stocking groceries, and paying the other person’s bills. All this is being done in addition to everything else the caregivers are already doing in their own life.

You know family caregivers even if you don’t realize it. They don’t advertise their situation, it’s just part of their lives. You stand in line next to them in the store, sit by them at the high school football game or next to them in church. They are your neighbors, coworkers and friends. Don’t shy away from them. Being a family caregiver is not contagious, and neither is the life situation that has made them a caregiver.

If you know a person who is a family caretaker, lend them a hand by offering to help with specific tasks. Let them know you are able to help by picking up the groceries for their housebound parent, supplying a monthly dinner to the caregiver’s family, being available to help in an emergency (remember, these caregivers are often juggling numerous family duties) or sometimes more importantly, lending an ear or shoulder to cry on when needed. A friendly phone call, e-mail, or greeting card can make a difference in a caregiver’s day.

It’s easy to tell a caregiver to take care of himself or herself, but it is hard for a caregiver to do. Assist them by taking them out for a cup of coffee, or stopping by their house with a cup of hot cocoa on a scheduled visit. Treat a caregiver the same way you would like to be treated – with kindness and respect, and a little TLC.

As stated in the White House Proclamation, “National Family Caregivers Month is a tune to reflect on the compassion and dedication that family caregivers embody every day. As we offer our appreciation and admiration for their difficult work, let us also extend our own offers of support to them and their loved ones.”

Submitted by: Gincy Heins

 

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tears of frustration

I am crying tears of frustration! I’m exhausted, angry and ashamed of the way I am feeling. My husband gave me a stern lecture yesterday, saying that he felt we weren’t connecting and that he was no longer my prime concern.

For over a year now, I have been caring for my parents. They are in a retirement facility and both their physical and mental health has taken a rapid slide downhill. Little things send them into a tizzy: running out of Metamucil, a new toilet that has a flush that is too noisy, another buffet dinner in the dining room…

Yesterday my father complained of an urgent health problem, so I called his doctor and set up an appointment. The clinic is a 5 minute drive away from where they live. I am a half hour away and work full time, so was unable to come and take them. I suggested a taxi and checked with the clinic to make sure they would call a taxi for my parents to take them home afterwards. They reassured me that it would be taken care of. Turns out they wouldn’t and didn’t. After waiting an hour to see the doctor, when they were done, the receptionist told them they would have to call a taxi themselves and directed them to a phone. With no idea of the phone number for a yellow cab, they wandered around, finally asking the clinic’s parking lot attendant if he could get a cab for them. An hour later, they were still stranded, confused and panicked. Someone finally took pity on them and helped. Thank goodness my mother accompanied my Dad, as his memory is fading, leaving him confused and teary. I hate to think of what would have happened if he were alone.

Am I alone in feeling like a failure on all fronts? So many women must be in the same boat!  How does anyone juggle it all, without feeling like you are ultimately letting everyone down?

 

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“boomer” addiction spikes

I was watching my local evening news tonight, while eating dinner, when they aired an alarming story in regard to “Baby Boomers”. While alcohol is the most popular addiction for our age group, prescription drug dependence has spiked dramatically: The older we get, the easier it becomes to get a doctor to prescribe medication for aches and pains. With retirement, there are fewer consequences to suffer, as there is not a workplace to hold one accountable for being under the influence. According to the newscast, “Experts predict the number of 50-plus addicts could double in the next eight years.”

My mom is in her 80’s and needs a pill to sleep and an anti-depressant to function. She was prescribed a pain pill when she fractured her rib, which has long since healed, but insists she still needs the pill for residual pain. Mom is definitely an addict and when I have brought up my concerns about this to her physician, he brushes it off.

When I spoke to a close relative about the situation, his response was “If she’s happy, why worry?” Do I need to? And what about the anti-depressant I take because my doctor prescribed it to help me deal with the constant stress of being a caregiver? WHO else out there can relate?   Written by Claire in Seattle

http://www.king5.com/health/New-face-of-drug-use—Baby-Boomers-140806613.html

 

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caregiving: searching for the sacred

Taking care of someone involves a serious amount of stress and strain, both physical, emotional and spiritual. Many of you reading this know this first hand. In some of the work I have been doing in the area of  baby boomer spirituality, it has become obvious that, in the United States, we have created a new life stage called “care-giver”. Yes, we have always had care-givers. However, what really has set this apart in our times is the fact that, due to the blessings of medical technology, this life stage can now last months, even years. I am fond of reminding audiences that I prefer not to use the term “sandwich” generation, rather prefer the term “club sandwich” generation, as multi generation care-giving is no longer a rarity.

The length of this new life stage presents us and our society, with challenges unforeseen a generation ago. And, as we sit with our parents, many of us wonder quietly, if this is our future as well.

I would like to suggest that this new year of 2012 provide us with an opportunity to look at how those of us who walk this walk, can be strengthened in this journey. Often, despite the best of intentions, care-givers do their job in isolation. As many of you know, that care-giver is often a woman who must juggle a job, and/or family along with a loved one. Often, in the midst of this juggling of schedules and logistics, there is a sense of being or feeling spiritually depleted. There is a real need for religious institutions to recognize this growing trend of care-giving and to provide avenues for supporting the care-giver. Some congregations have very active support networks for individuals and families involved in care-giving. Some congregations I know of, have actually scheduled special services that honor the care-giver, or created moments when they are recognized and blessed. After all, the Commandment to “honor and respect” our parents appears three times in the Bible and carries with it, regardless of your affiliation, the understanding that this act is sacred.

Why not, in this new year, seek out ways in which your religious congregation can honor, support and celebrate those who take care of loved ones. It will be an opportunity to bring the sacred into the moment and bless the presence of those who do this powerful work.

Shalom,

Rabbi Richard F Address, D.Min

www.jewishsacredaguing.com

 

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could it get worse?

mri scannerNews at my end – While my Dad hasn’t improved, we received results today from the MRI he had last Friday.  He will be having a steroid shot to the spine tomorrow morning which they hope will give him relief.  He has a disc herniation pinching the left side of the nerve root.  The injection takes about 3 days to work, so here’s praying that this helps.  Alternatives are trying to see if it will heal itself in 4 – 6 weeks (no sign that is happening during the past 3 weeks!) or surgery which they definitely hope to avoid due to his age.

Then three weeks later….I had to drive 3 hrs to see them, as I got a call from my brother that my mom was in the emergency room.  She had dislocated a rib.  Got here at 7 pm and IT WAS A MESS! I will be was there for three full days getting more care set up.

OH AND ALSO, my parents came to the conclusion that they need to go into assisted living. Unfortunately they have no idea about their insurance coverage. Neither of them are familiar with the details of their health care policy. Guess who needs to take that on before my parents know what their options are?  M E !

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