Tag: setting boundaries

welcome to girlfriends with aging parents

mindful caregiving

Hurry, hurry, rush, rush seems to be the mantra of modern life. We are constantly rushing to work, to pick the kids up from school, to get dinner on the table; all with the incessant chorus of cell phones beeping and buzzing, demanding our attention. When a loved-one experiences an accident or experiences a major-medical problem, it is as if life is throwing a giant stop sign in our paths. But we don’t know how to slow down, much less stop.

Whether we are caring for an elderly parent with dementia or a spouse recovering from a heart attack, it can be hard to force our busy minds to match the new, slow pace at which our loved ones move. The endless hours spent caregiving are so easily filled with worry and rumination. The practice of mindfulness- learning to live in the moment- can help us savor our time with our loved ones. Research shows that the happiest people on Earth practice mindfulness. Luckily, you don’t have to be a Buddhist monk or buy special equipment to learn this practice. The whole point is to tune in to the here and now. The Art of Now: Six Steps to Living in the Moment by Jay Dixit describes both the benefits of mindfulness and ways to get started much better than I am able to. http://bit.ly/Zfvnc6

Early on in my career as a caregiver, I discovered that mindfulness made my shifts seem to flow by quickly. The practice helped me capture the most joyful moments with my clients. One elderly woman I cared for had such cold hands, we spent many evenings holding hands on her couch. Rather than counting the minutes as they ticked by, I learned to enjoy the moment. I studied our hands clasped together; my young, plump hand entangled with her slender fingers, decorated with a blue web of veins. I noticed her skin gradually warm up. Just as discussed in the above link, I truly savored those moments with my client. We both found such peace in each other’s company.

I believe the practice of mindfulness makes me a much better caregiver. By focusing on the here and now, I notice things such as a pin in the carpeting or a throw rug’s upturned corner that would be easily overlooked if I were mindlessly worrying about something else. Observing my surroundings helps me keep my clients out of harm’s way. Applying that same power of observation to a client helps me detect changes in their health more quickly. Observant caregivers can spot the malaise that comes before a urinary tract infection or a bout of the flu. When working with people with dementia, noticing those little warning signs that precede an outburst helps keep things from getting out of hand. Learning to live in the moment takes practice and time to master, but the rewards are well worth the effort. With time, it becomes effortless.

~Amy Kirkeide, Comfort Keepers

 

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breaking away as caregiver

I have worked as a Assisted Living Administrator for many years. I have seen it all! My first piece of advice is to understand, as our parents grow old, they grow even younger at a very fast rate. They revert back to not wanting to go any where with out mom (that has now became you). Basically, they are fearful of doing or being someplace and not having that trusted family member with them. For example, when they forget how to do simple things like fill out a check for a Dr. Office co-pay, they are uncertain & look for your help. Or getting on the facility van and then … what should they do? They will be thinking, “What if I don’t know when to get off the bus?”

If you have children, you will remember when you first put them out into the big world alone. You went with them as they first walked to school, you would come eat lunch with them because it was all too overwhelming at first. Yes, you even brought a set of clean clothes just in case they couldn’t make it to the bathroom in time.

Lord forbid as a grown-up (that has managed a whole lifetime successfully) would have a bowel accident in the dinning room of a assisted living facility with 80 other people watching. This is what is going on in your parents minds! You may not even know that Dad wipes the milk off Mom’s chin at the dinner table or that he cleans her up late into the evening because shortly after bedtime she can’t make it in time to the bathroom. Some things Dad may not share with you.

See the picture I’m painting? You are the only one at this time they trust to cover for them. So, like we did with our children, we break away slowly. This allows our parents to gain trust in the facility. Good idea to stop taking them in your car. Instead,  ride on the van with them a few times, but let the caregiver do the work, the transfers, help getting their coat on etc, etc.

Our seniors need to use what they have paid for. You can tell them, “Dad we are paying $150. a month because the facility has transportation for you. Then move it on to “You have a appointment, you ride in the van and I will be at the Dr. Office when you arrive”. Again, letting the caregiver do all the assistance. Just be with them. Get where I’m going with this? Do the same with the dining room, eat with them, and then slowly start backing off once you can see they are making friends. It’s a long road, but its one I have seen work many times. Blessings and praise to you for your heart of gold, and the willingness to ask for help. Anyone else there?

I have other tips on my site LaneSeniorLiving.com  written by: Tricia Pruen

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why Mom can’t help!

My mom & her husband, Sid have been married for 38 years. This is a second marriage for both of them. They each have two children, each having a boy & girl.

Sid’s children believe that he should no longer be driving. They want my mom to back out of the way so that the two of them (Sid’s biological children) can strip him of his car keys. This decision was prompted by many factors. One is that Sid walks with a cane & is very unstable. Another is that he has been taking two medications that together have caused him delusions & slurring his words. The difficulty is this … my mom feels that her first allegiance is to her husband. She feels fiercely protective of him & cannot condone this action. My mom swears that she is monitoring Sid’s medication & that he is a “good driver”. She says that he is not a danger to himself or a menace to others on the road. My mom believes that a man’s dignity & pride are tied up in this issue. I can also see that my mom is trying to preserve Sid’s independence both for him and for herself!

This feels so messy. Is there anyone else out there that has dealt with this??? HELP

 

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how do I find balance?

balancing actMy parents have always been ferociously independent. Their often repeated mantra over the years has been “we will never burden our children”. After a series of closely spaced physical maladies, my mom AND dad have seemingly changed overnight from wise elders to dependents ; unable to make a decisions - “strangers”. While I know they are frightened since their circumstances have changed so suddenly; I am also frightened as they have become helpless and unfamiliar. I desperately want to help them and am terrified of doing the wrong thing. I am rife with guilt: we live in different cities and while they would like me to be there 24/7, I have a husband, work, kids(albeit grown) and responsibilities at home. How does one find any semblance of balance? How do I say “no” or set boundaries for the people who raised me and have always been there for me?. How can I be there for them AND for everyone else, INCLUDING for myself?????

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elder stress & the holidays

menorahI recently had a conversation with a close friend about dealing with anxiety and depression in elderly parents during the holidays, as well as our own tensions at this time of year. Both her mother-in-law and mine are widows and November through December seems to be a particularly stressful, depressing time for them, even though they are surrounded with family at Thanksgiving and, in our case, Chanukah. Not only does the season remind them of their loss but the entire family feels the absence of an integral member.

Sibling issues can also get heated at this time of year, especially when an out of town brother or sister comes to visit and, offering what they think of as advice, is instead taken as unasked for criticism by the care-giving family member. Misunderstandings intensify and the fight is on.

Add that to the caregiver’s stress of shopping for presents, planning, cleaning and cooking for holiday gatherings, transporting a parent during inclement winter weather, kids home for the holidays… and it is no wonder that the ho-ho-ho has literally been sucked out of the holidays.

Christmas TreeSo, how do we get a handle on our stress and help our parents with theirs? We agreed that if we take care of ourselves by planning ahead and not biting off more than we can handle (delegate!), ask for help, really make a concerted effort to listen to our own feelings and in turn, be a good listener (not a reactor) to others, then we’d be on the right track. We also need to be mindful that the holidays represent a change in the daily schedule and can be overwhelming for an elderly parent – try to stay tuned in to their needs. Just make sure that they have something as simple as a comfy chair; keep an eye out for fatigue and a readiness to head home. It can make the day so much more enjoyable for all.

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role reversal

Dad—who would’ve believed? This man had his first heart attack in his 40s, triple bypass at 60, a brain tumor in his 70s and a stroke in his 80s. The guy was stubborn (meaning grumpy), full of existential angst, who didn’t know healthy boundaries (as we’d say today).

Today my dad is 91 years old, confused, barely mobile—and happy! Nothing ruffles him, except occasionally Mom’s incessant complaining. He has no worries, unless Mom is in the hospital. My parents are joined at the hip.

Dad sits in the same chair -his chair, hour after hour, with a silly half-grin on his face. Sometimes he closes his eyes—we think he’s dozing–until he pipes up in a conversation he’s been following all along. Maybe tuning out the visual helps him concentrate.

My dad used to tell stories of his childhood, then they got jumbled together. Now it takes some prompting and the stories make even less sense. It’s too late to get a reliable family history.

I think he genuinely feels loved. He welcomes our greetings with an upturned countenance, innocent of our ambivalence, the wounds we carry into the room of his past, inappropriate behaviors.

He knows he’s a short-timer on this earth. Does he yearn for heaven? If so, he waits patiently, content to sit, nap, and read for short periods at a time. His one great joy—eating! Who would have believed?

Is this the “real” Dad, released from his own woundedness at last?

I’ve heard it said that those attitudes we nurture in earlier adulthood—be they love or hate, contentment or self-pity—are magnified as we age and the self-censoring center of our brain declines. Is Dad the exception that proves the rule?

This gives me pause for my own old age. Who knows what I will become? Will I be a saint or a tyrant? Lord, have mercy on us all.

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tough personal choices

I am the sole caregiver of my 93 year old deaf and blind father.  That sounds like it is a rock pile, but he is about the  liveliest “deaf and blind guy” (his words) one could imagine.  He is frail and unsteady, but engaging and cognitively intact.

Last week my phone rang, and I had that immediate “oh NO” reaction when I saw it was from the nurse at his independent living facility.  He had been dizzy during the night and was on his way to the emergency room via ambulance.

elderly man in ambulanceI have been to the emergency room many times with my father.  Each time he becomes the darling of the ER while I act as his interpreter and advocate.  I become exhausted while he gets energized.  The nurses think he is cute; the practitioners want his attitude towards aging.  Everyone sees an inspiration.  I see a long exhausting day or evening in front of me.

But this time, I didn’t go to the ER.  For the first time in the 5 years he’s been out here, I didn’t take him or meet him there. I felt terrible, a bad daughter.  I know some day the trip to the ER will be the last trip.  But not this time. I had a very full work day, and put that first.

I felt a great sense of relief when the nurse called me several hours later to ask how my father was going to get home. “Taxi?”, I said tentatively.  An hour later my father called me to say he was home.  They couldn’t find anything wrong.  A bullet dodged!

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